I weigh 8st 5 and have been taking 400mg about two and a half years, no mention of it being too much. Glenys.

That's reassuring to hear Mari...yes this is what mine were/are too but now with the beauty of dailies, I just take them out and throw! LOL

Dear Sue,

I hope the Hydro really helps you!

Love,

Amanda

Hi ,

I am issues too. Rheumy offered to top off with sulpazine or put me back on the metx I said I would stick a bit longer with hydroxyc but RA have been very active of late. I am only on about day 34/35 so early days yet.

Mari

Hi all

I saw my GP yesterday and she has kept me on the morphine patches. She was also mad that my rheumy appointment was cancelled for today and i now have one this Friday.

Fingers crossed i may get to start the MTX.

I hope everyone is okay and managing with this cold weather.

Love Shirley

Hi Hydroxy gang,

Just wondered if anyone else had experienced blurred vision whilst on these? My eyes are really blurred after I have been reading and when I am tired. I'm not worried that it's anything to do with retina problems as no gaps in vision or change in colour vision or anything but my eyes feel even drier than ever (keep forgetting to take artificial tears to work), just wondered if anyone else had this and how you are all getting on.

Julie

Hi Julie,

I also find my eyes become blurry after reading which is TERRIBLE as I read often! LOL

Also, my night vision is most definitely affected and I am going to raise this with the rheumy as I feel unsafe driving around at night sometimes!

(and no this is not when I have had a bottle of red..............ha ha)

How's the RA on it, any improvement?

Much love,

Amanda

I started seeing blurry bits in my left eye shortly after starting hydroxy.. the only way I can describe its as if I have to refocus.. for those who wear contacts, you'll know what I mean when I say its as if you've moved your eyes from left to right and the contact lense hasn't quite caught up.

Mentioned it to my optician who said my eyes were all ok... in fact my vision had improved from last year. To be on the safe side he decided to refer me to the eye hospital.

Seems my blurred vision is a mixture of things but its definitely not to do with the hydroxy. I was diagnosed as being anemic back in September and went onto iron tablets.

I'm used to seeing little black spots floating past with the anemia but when I got the blurred vision I panicked

The doctor explained that I have small pieces of debris that ‘float’ in the vitreous humour of the eye. It can be quite common and as RA can affect tissue etc plus make you more prone to anemia, you tend to notice floaters.

I found some good info on the NHS site

He's told me to just keep an eye (scuse the pun) on things... that if I start experiencing flashing or severe headaches then I need to go back. This is because there is a history of cataracts in my family plus my mum recently had a macular hole (a small hole in the macula which is in the centre of the retina)

Sometimes my eyes will feel tacky, so I have to stretch my eyes open wide and this is usually a sign that they are dry so I pop in some of the artificial tears.

Hi Julie

well according to bloods inflammation down few markers,seeing an improvment in facial skin rashes so feel yes soem improvemtn all round.

doc said still bit early to tell so il compare next lot bloods and see.
lv melly

I want to join the hydroxy people -they sound cool!!

Have been on it for about 5 months, and to be honest RA has continued to deteriorate during that time, so it hasn't turned my life around. But it is the only DMARD I can tolerate, so I maybe even worse if I stopped it. Anyway, I am staying on it and starting Humira.

Will keep an eye on my eyes! Supposed to be having a check up, but rheumy has forgotten - thankyou for reminding me to chase it up

Alison xxx